Howdy, folks! It’s been a while!
Isaac left the PPH just over a month ago. It’s been an interesting month, to say the least.
Isaac is still at DT in “partial hospitalization.” Partial hospitalization has been a great thing for Isaac (even though it means tons of driving and scheduling and craziness for Mom)! Isaac works with the wonderful staff members there, including a fantastic psychologist, every day. We love her and she is helping him work through a lot of his issues. She meets with me (and Hubby, when he can make it) for an hour every week. Her thoughts are always helpful, she always listens attentively, and her ideas are very useful (and never condescending). I couldn’t be more pleased.
Isaac also meets with a psychiatrist at DT at least once a week. We also like him a lot. He is very attentive and has some interesting ideas on how to help Isaac. He is also a magician at pulling strings. For instance, MONTHS ago, our old psychiatrist (pre-PPH) suggested we get Isaac in with a well-known (world-famous, really!) neuropsychologist. She is the end-all, be-all of neuropsychology and we’ve had MANY doctors/therapists refer us to her. But the best anyone could do was put him on a YEAR-LONG wait list! No matter who tried to get us processed faster, we just couldn’t move up that wait list. Well, our new psychiatrist was able to work his magic and explain the urgency of Isaac’s situation and this doctor and her team were able to squeeze him in, little bits at a time, a few hours here, a few hours there, and yesterday he had his final appointment with them. A whole year before we were scheduled! Haha. We look forward to the results of this testing. I expect it will be very intriguing. I was not in the room for any of the actual testing, but it included an unconventional IQ test (unconventional because a standard IQ test wouldn’t work with someone like Isaac–it wouldn’t demonstrate his actual IQ). The testing also included a Rorschach test! I didn’t even know that was a real thing anymore, but it is. I’m very interested to get the results from that one! Anyway, those results should be in in the next couple of weeks.
He’s also been able to see the neurology team at Primary Children’s Hospital. Our purpose there was to find out if perhaps some of Isaac’s issues were neurological. That would include things like seizures, brain structure abnormalities, and growths/tumors (either cancerous or benign). They were able to unequivocally rule out any neurological condition. So that’s good. We can stop wasting our time barking up that particular tree.
So, if you’re keeping track, that’s pretty much every single brain-type doctor in the state of Utah. We’re single-handedly keeping them all in business. Psychology. Psychiatry. Neuropsychology. Neurology. Brains, brains, brains, and more brains.
Isaac’s medicine routine hasn’t changed a whole lot since the PPH, nor have his diagnoses (autism/OCD/Tourette’s/Schizoaffective Disorder). Even so, and even with such an awesome team of therapists and doctors, everyone is still baffled by him. But the medicine does appear to be working when it comes to mood/behavior. That’s not to say we don’t still have some bad days because, holy cow, we so totally do, but they are much less frequent. The psychosis, however, persists.
As for Isaac personally, he likes DT, but at the same time, he’s desperate to leave. He is so afraid of missing out on the world outside the hospital. He agonizes over not being at school where all of his friends are. He misses his in-home therapists. He panics over the idea of getting behind or being forgotten. Being forgotten is the scariest thing in the whole entire world. He has resorted to threats and bribes to get finished with his hospitalization. Naturally, that approach backfires. Poor kid.
And what IS the plan? How long does he have to endure partial hospitalization? Uh… Good question. No one seems to know. I’m not sure exactly what the deciding factors will be. But it was suggested that perhaps at the beginning of October, he might be ready to slowly transition from day treatment to school. We’ll see.
Whew! There it is! A whole month condensed into one verbose email! Love and gratitude to you all!